Everyone has put this so well: I’m with my tribe. I’m around everyone who gets me. Never have I felt this connected and synchronized in my entire life. These people at #MedX; these people are incredible. Their stories, their lives. So similar yet so different. I cannot even put into words how I feel right now.
I am forever changed by #MedX. I plan to write about some more specific healthcare and ePatient ideas, but this is more of my thoughts post-conference. I am struggling today with a serious #MedXHangover.
Also, I’m writing this on the plane while 3 people around me have their shoes and socks off. Why is that okay? I have a case of the Mondays, clearly. So grumpy!
Another take away from #MedX for me is that I think I need to fight harder about some things with my illnesses. It’s clear that I have two main diseases that have caused other conditions: Ankylosing Spondylitis and Fibromyalgia. What isn’t clear to me are some of the severe symptoms I have that don’t necessarily fit either of those two conditions. I just feel like we’re missing something. And I won’t stop until I feel like I have everything figured out in order to have the highest quality of life. Excuse my language but right now, my health quality of life is shit.
- Why do all of my joints ache and hurt?
- Why are my knees and ankles continuing to get so swollen all the time?
- Why do I feel like a walking zombie? This fatigue has gotten debilitating.
- Why am I in SO much pain, literally everywhere? My entire body is screaming lately.
- Why do some of the diseases talked about at #MedX sound 100% the same as my symptoms?
- Why do I feel like I have a 24/7/365 flu virus?
- Why is my brain fog making me feel like I have memory loss?
Anyway, had to jot those down so I don’t forget to touch base on them later with all of my doctors.
I don’t know how to coherently spell out how I feel about #MedX and all of people there and concepts presented. It’s seriously changed my life, for the better. It has awoken this passion and drive, and dream really, that I thought was only smoldering below the surface. Well, smoldering no more, it’s a full blown fire.
Patient engagement, patient experience, patient advocacy, technology, social media, healthcare, chronic illness, provider/health system/patient, invisible and visible illnesses, eHealth, etc. Thats #MedX. And that’s what I want to do.
That’s all I have right now. My brain is a jelly mush, and I’m in too much pain to function.
I’ll update more later!