Category: Patient Advocacy
Let me tell ya ’bout my best friends! If you haven’t discovered Autoimmune Sisters yet, what are you waiting for!?
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Category: Autoimmune Arthritis, Chronic Illness, Patient AdvocacyTags: advocacy, autoimmune arthritis, autoimmune disease, autoimmune sisters, autoimmunity, blogs, chronic bloggers network, chronic diseases, chronic pain, Chronically Kristin, community, followers, recommendations, social media, women
The one where I explain my least favorite 4-letter word and why it’s dangerous.
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Category: Autoimmune Arthritis, Chronic Illness, Patient Advocacy, Rheumatoid Arthritis, TreatmentsTags: autoimmune arthritis, autoimmune disease, autoimmune sisters, chronic diseases, chronic illness, chronic life, chronic pain, Chronically Kristin, cure, fibromyalgia, homeopathic, medicine, rheumatoid arthritis, spondyloarthritis, treatment
Posted on April 15, 2016
by Kristin M. Johnston
1 Comment
Happy Friday, everyone! I can’t help but be happy and smiley today; the weather is so beautiful in Chicago today. Wait, why am I in Chicago? This weekend is the HealtheVoices conference, which is put on by Janssen, is a place for… Continue Reading “#HealtheVoices16 Conference”
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Category: Chronic Illness, Patient AdvocacyTags: #healthevoices16, chicago, chronic illness, Chronically Kristin, conference, epatient, healthcare, healthevoices, janssen, online advocates, patient advocacy, social media
Hi everyone! So as most of you know, I’ve spent the past few weeks blogging for ePharma. The conference was last week and I really enjoyed live-coverage and blogging for the sessions. I have a full recap coming soon, sometime this week. However, here’s… Continue Reading “ePharma Recap Coming: Sorry for the Interruption”
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Hi everyone! I just wanted to update with a post on my blog posts for ePharma Summit. You can read my posts, and others, on their blog, here. Follow them on social media with @epharma and #epharma16. Here are the first two… Continue Reading “ePharma Blog Posts”
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Category: Patient AdvocacyTags: blog posts, chronic illness, chronic pain, Chronically Kristin, epatient, epharma, epharma summit, epharma16, health, healthcare, Invisible Illness, life, support
Posted on January 17, 2016
by Kristin M. Johnston
1 Comment
Sometimes the timing on things in life blows my mind. I have recently been feeling pretty down about not having more opportunities or time to do my ePatient advocacy and chronic disease awareness work, especially when it comes to blogging and social media about… Continue Reading “ePharma Summit”
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Category: Patient AdvocacyTags: autoimmune disease, blogging, chronic illness, Chronically Kristin, digital strategy, epharma, epharma summit, epharma16, health, healthcare, innovation, patient advocacy
Posted on January 12, 2016
by Kristin M. Johnston
3 Comments
*Disclaimer: I used my phone mic to type out this blog post earlier. It’s an endless stream of brain vomit. I needed to just get a blog post out–and this is what I ended with. Excuse the rambling, incoherent thoughts. So here’s… Continue Reading “Brain Dump”
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As we wrapped up the last day of Mayo Clinic Center for Innovation Transform 2015 yesterday, so many thoughts are running through my brain. And said brain is mush, ya’ll. I’m traveled out. I’m conferenced out. I’m worked out. I need a vacation! But… Continue Reading “Patient, Person, Actor, Life.”
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Category: Patient AdvocacyTags: advocate, autoimmune disease, chronic life, Chronically Kristin, epatient, health, healthcare, healthcare system, innovation, Invisible Illness, labels, medx, patient advocacy, patients, presentation, stanford medicine x, transform, txfm, whole person
Posted on September 30, 2015
by Kristin M. Johnston
3 Comments
If I had to pick a constant in my life, something I hear and work towards continuously, and something that has been under the microscope for the past week and for the next three days, what would it be? That’s easy: patient first. Patients.… Continue Reading “Patients: If You’re Not First You’re Last”
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Category: Patient AdvocacyTags: ankylosing spondylitis, care, chronic disease, chronic fatigue syndrome, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, epatient, fibromyalgia, health, healthcare, mayo clinic, medicine x, medx, patient advocacy, patient care, patient engagement, rhinitis, stanford med x, transform, txfm
Everyone has put this so well: I’m with my tribe. I’m around everyone who gets me. Never have I felt this connected and synchronized in my entire life. These people at #MedX; these people are incredible. Their stories, their lives. So similar yet so… Continue Reading “My Tribe: How Sick Am I Really?”
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Category: Patient AdvocacyTags: advocacy, ankylosing spondylitis, autoimmune, chronic illness, chronic life, Chronically Kristin, conference, engagement, epatient, fibromyalgia, medicine x, medx, patient, sick, stanford