Tag: ankylosing spondylitis
It’s been a long time since I’ve written a true health update here. However, while a great deal has happened, there are still no answers or conclusions to share with everyone. Maybe that’s why I’ve been avoiding writing about this–I still have so many unanswered questions. But for my own benefit of recording my health status accurately, and to catch us all up to at least where we stand today, it’s important that I share what I know thus far.
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Category: Chronic IllnessTags: ankylosing spondylitis, autoimmune disease, autoimmunity, chronic disease, chronic diseases, chronic illness, chronic life, chronic pain, Chronically Kristin, depression, fibromyalgia, health, healthcare, Invisible Illness, life, medications, second opinion, strength, UofM
If you haven’t checked out the #SELFCAREMVMT yet from Self Care Catalysts, I urge you to visit their website and read my first blog in the series from last week. Self-care is an integral part of the quality of life of a chronic illness patient. Patients are advocating for this movement, and now companies are too!
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Category: Chronic Illness, Life AdviceTags: #selfcaremvmt, ankylosing spondylitis, app, blogger, chronic illness, chronic pain, Chronically Kristin, disease management, education, exercise, fibromyalgia, health storylines, healthcare, patient advocacy, physical self-care, self care catalysts, self care movement, support
This blog post is a tad overdue; to be honest, I think I have been apprehensive to talk about getting a second opinion, what that means, potential outcomes, and everything else that has been happening surrounding the appointment. It almost didn’t feel real that…
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Category: Chronic IllnessTags: ankylosing spondylitis, autoimmune disease, autoimmunity, chronic illness, Chronically Kristin, epatient, healthcare, Invisible Illness, lab tests, results, rheumatologist, rheumatology, second opinion, Treatments, University of Michigan, UofM, xrays
Disclaimer: This is a sponsored post. However, all thoughts and opinions are my own. The healthcare system and industry in this country is a complicated being. We’re dealing with Pharma, Hospitals, Consumers, Doctors, other Healthcare Professionals, Insurance, Patients, Manufacturers, and more. Needless to say,…
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Category: Chronic Illness, Reviews/Sponsored PostsTags: ankylosing spondylitis, anxiety, chronic costochondritis, chronic fatigue syndrome, chronic illness, chronic pain, Chronically Kristin, depression, education, fibromyalgia, healthcare, MedNexus, patients, research, rhinitis, search engines
Posted on February 1, 2016
by Kristin M. Johnston
10 Comments
I mentioned back in October, that I was in one of the worst flares I have ever had while I was doing all of that travel and conference experience (#MedX and #TXFM). The flare continued when I got home. And added lovely symptoms of fatigue,…
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Category: Chronic IllnessTags: ankylosing spondylitis, arthritis, autoimmune disease, autoimmune diseases, autoimmunity, chronic illness, chronic pain, Chronically Kristin, depression, fibromyalgia, health, health update, Invisible Illness, MRI, pain, second opinion, University of Michigan, UofM
Posted on December 16, 2015
by Kristin M. Johnston
4 Comments
I could say a lot of reasons why I haven’t blogged in weeks. But I won’t. It just hasn’t happened. I have a lot of posts in the queue, but not much action on them. Words are stuck. There’s a lot of things going…
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Category: Chronic IllnessTags: ankylosing spondylitis, costochondritis, depression, feelings, fibromyalgia, funk, FX, health update, honesty, life, rhinitis, you're the worst
Posted on November 9, 2015
by Kristin M. Johnston
7 Comments
This post is a little overdue.. I think I might have been procrastinating it because there are many things to update with regards to my health. So I apologize that it’s a little lengthy. As per usual, it’s one step forward, three steps back,…
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Category: TreatmentsTags: ankylosing spondylitis, arthritis, autoimmune, autoimmune disease, autoimmune diseases, autoimmunity, chemotherapy, chronic, chronic disease, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, disease, drugs, fibromyalgia, methotrexate
Posted on September 30, 2015
by Kristin M. Johnston
3 Comments
If I had to pick a constant in my life, something I hear and work towards continuously, and something that has been under the microscope for the past week and for the next three days, what would it be? That’s easy: patient first. Patients….
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Category: Patient AdvocacyTags: ankylosing spondylitis, care, chronic disease, chronic fatigue syndrome, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, epatient, fibromyalgia, health, healthcare, mayo clinic, medicine x, medx, patient advocacy, patient care, patient engagement, rhinitis, stanford med x, transform, txfm
Everyone has put this so well: I’m with my tribe. I’m around everyone who gets me. Never have I felt this connected and synchronized in my entire life. These people at #MedX; these people are incredible. Their stories, their lives. So similar yet so…
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Category: Patient AdvocacyTags: advocacy, ankylosing spondylitis, autoimmune, chronic illness, chronic life, Chronically Kristin, conference, engagement, epatient, fibromyalgia, medicine x, medx, patient, sick, stanford
Posted on September 26, 2015
by Kristin M. Johnston
1 Comment
I’m currently out in Palo Alto, CA attending the Stanford Medicine X #MedX conference. A few hours into Day 2, and I know I need to get some thoughts down and try to dissemble the jumble of words floating around my head right now. Also,…
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Category: Patient AdvocacyTags: ankylosing spondylitis, arthritis, autoimmune disease, autoimmunity, blogger, chronic disease, chronic fatigue syndrome, chronic illness, chronic pain, Chronically Kristin, conference, costochondritis, depression, disease, education, epatient, fibromyalgia, health, health system, healthcare, invisible illnesses, medx, palo alto, patient advocacy, patient forward, rhinitis, stanford medicine, stanford medicine x, stanford university, technology
