Tag: ankylosing spondylitis

A Health Update: Off Meds

It’s been a long time since I’ve written a true health update here. However, while a great deal has happened, there are still no answers or conclusions to share with everyone. Maybe that’s why I’ve been avoiding writing about this–I still have so many unanswered questions. But for my own benefit of recording my health status accurately, and to catch us all up to at least where we stand today, it’s important that I share what I know thus far.

#SelfCareMvmt 2: Physical Self-Care

If you haven’t checked out the #SELFCAREMVMT yet from Self Care Catalysts, I urge you to visit their website and read my first blog in the series from last week. Self-care is an integral part of the quality of life of a chronic illness patient. Patients are advocating for this movement, and now companies are too!

One Step Forward, Four Years Back

This blog post is a tad overdue; to be honest, I think I have been apprehensive to talk about getting a second opinion, what that means, potential outcomes, and everything else that has been happening surrounding the appointment. It almost didn’t feel real that… Continue Reading “One Step Forward, Four Years Back”

MedNexus: You’re Not Just A Consumer

Disclaimer: This is a sponsored post. However, all thoughts and opinions are my own.  The healthcare system and industry in this country is a complicated being. We’re dealing with Pharma, Hospitals, Consumers, Doctors, other Healthcare Professionals, Insurance, Patients, Manufacturers, and more. Needless to say,… Continue Reading “MedNexus: You’re Not Just A Consumer”

A Confused Health Update

I mentioned back in October, that I was in one of the worst flares I have ever had while I was doing all of that travel and conference experience (#MedX and #TXFM). The flare continued when I got home. And added lovely symptoms of fatigue,… Continue Reading “A Confused Health Update”

We’re Getting Real Around Here

I could say a lot of reasons why I haven’t blogged in weeks. But I won’t. It just hasn’t happened. I have a lot of posts in the queue, but not much action on them. Words are stuck. There’s a lot of things going… Continue Reading “We’re Getting Real Around Here”

“You Don’t Have Cancer, But You Should Take Chemo”

This post is a little overdue.. I think I might have been procrastinating it because there are many things to update with regards to my health. So I apologize that it’s a little lengthy. As per usual, it’s one step forward, three steps back,… Continue Reading ““You Don’t Have Cancer, But You Should Take Chemo””

Patients: If You’re Not First You’re Last

If I had to pick a constant in my life, something I hear and work towards continuously, and something that has been under the microscope for the past week and for the next three days, what would it be? That’s easy: patient first. Patients.… Continue Reading “Patients: If You’re Not First You’re Last”

My Tribe: How Sick Am I Really?

Everyone has put this so well: I’m with my tribe. I’m around everyone who gets me. Never have I felt this connected and synchronized in my entire life. These people at #MedX; these people are incredible. Their stories, their lives. So similar yet so… Continue Reading “My Tribe: How Sick Am I Really?”

Home Is Wherever I’m With You

I’m currently out in Palo Alto, CA attending the Stanford Medicine X #MedX conference. A few hours into Day 2, and I know I need to get some thoughts down and try to dissemble the jumble of words floating around my head right now. Also,… Continue Reading “Home Is Wherever I’m With You”

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