Getting real around here to talk about mental health and coronavirus anxiety.
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Category: Chronic Illness, Life AdviceTags: #chroniclife, advice, advocacy, anxiety, autoimmune disease, autoimmune diseases, chronic disease, chronic diseases, chronic illness, chronic life, Chronically Kristin, coronavirus, COVID19, depression, health, inspiration, invisibile illness, Invisible Illness, life, mental state, reality, strength, support, truth
The one where I talk about the AIP “diet” and ask for your advice, experience, and tips and tricks on transitioning into this lifestyle.
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Category: Autoimmune Arthritis, Chronic Illness, TreatmentsTags: #chroniclife, advice, AIP, arthritis, autoimmune, autoimmune disease, autoimmune diseases, autoimmune protocol, autoimmunity, chronic disease, chronic diseases, chronic illness, chronic life, chronic pain, diet, education, health, invisibile illness, Invisible Illness, research, rheumatoid arthritis, symptoms
Throughout the years of being diagnosed with numerous autoimmune/chronic diseases, I’ve learned that it can be a complete mind-fuck. Sorry for the bluntness, but it’s really the only way to describe it. What you think is good news is bad news; what should be… Continue Reading “When Bad News Is Good News”
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Category: Chronic Illness, Rheumatoid Arthritis, TreatmentsTags: #chroniclife, autoimmune, autoimmune disease, autoimmune diseases, autoimmunity, chronic disease, chronic diseases, chronic illness, chronic life, chronic pain, Chronically Kristin, disease, health, health update, invisibile illness, medical, medications, pain, patient, patients, rheumatoid arthritis, symptoms
Posted on June 19, 2016
by Kristin M. Johnston
1 Comment
I have talked a lot about this in the past. When you have chronic illnesses, the difference between visible and invisible illnesses becomes a large part of your interactions with the world around you. It’s a conundrum because you want people to understand what you’re going through, yet you also don’t want it to be the first thing people notice about you.
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Category: Chronic IllnessTags: #selfcaremvmt, autoimmune disease, autoimmune diseases, chronic disease, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, Chronically Kristin, depression, education, fibromyalgia, health, healthcare, Invisible Illness, life, pain, patient advocacy, self care catalysts, self care movement, strength
It’s been a long time since I’ve written a true health update here. However, while a great deal has happened, there are still no answers or conclusions to share with everyone. Maybe that’s why I’ve been avoiding writing about this–I still have so many unanswered questions. But for my own benefit of recording my health status accurately, and to catch us all up to at least where we stand today, it’s important that I share what I know thus far.
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Category: Chronic IllnessTags: ankylosing spondylitis, autoimmune disease, autoimmunity, chronic disease, chronic diseases, chronic illness, chronic life, chronic pain, Chronically Kristin, depression, fibromyalgia, health, healthcare, Invisible Illness, life, medications, second opinion, strength, UofM
Posted on November 9, 2015
by Kristin M. Johnston
7 Comments
This post is a little overdue.. I think I might have been procrastinating it because there are many things to update with regards to my health. So I apologize that it’s a little lengthy. As per usual, it’s one step forward, three steps back,… Continue Reading ““You Don’t Have Cancer, But You Should Take Chemo””
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Category: TreatmentsTags: ankylosing spondylitis, arthritis, autoimmune, autoimmune disease, autoimmune diseases, autoimmunity, chemotherapy, chronic, chronic disease, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, disease, drugs, fibromyalgia, methotrexate
Posted on October 29, 2015
by Kristin M. Johnston
2 Comments
Today I have a post that is slightly different than the norm. As I mentioned, I recently attended the Mayo Clinic Center for Innovation Transform conference. During the first day of the conference, Mayo Clinic revealed their new Well Living Lab, a first of its… Continue Reading “Interview: Mayo Clinic Opens First of its Kind Well Living Lab”
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Category: Fun StuffTags: advocacy, blog, blogger, chats, chronic disease, Chronically Kristin, conference, healthcare, innovation, interview, mayo clinic, Q&A, transform, txfm, well living lab
Posted on September 30, 2015
by Kristin M. Johnston
3 Comments
If I had to pick a constant in my life, something I hear and work towards continuously, and something that has been under the microscope for the past week and for the next three days, what would it be? That’s easy: patient first. Patients.… Continue Reading “Patients: If You’re Not First You’re Last”
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Category: Patient AdvocacyTags: ankylosing spondylitis, care, chronic disease, chronic fatigue syndrome, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, epatient, fibromyalgia, health, healthcare, mayo clinic, medicine x, medx, patient advocacy, patient care, patient engagement, rhinitis, stanford med x, transform, txfm
Posted on September 26, 2015
by Kristin M. Johnston
1 Comment
I’m currently out in Palo Alto, CA attending the Stanford Medicine X #MedX conference. A few hours into Day 2, and I know I need to get some thoughts down and try to dissemble the jumble of words floating around my head right now. Also,… Continue Reading “Home Is Wherever I’m With You”
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Category: Patient AdvocacyTags: ankylosing spondylitis, arthritis, autoimmune disease, autoimmunity, blogger, chronic disease, chronic fatigue syndrome, chronic illness, chronic pain, Chronically Kristin, conference, costochondritis, depression, disease, education, epatient, fibromyalgia, health, health system, healthcare, invisible illnesses, medx, palo alto, patient advocacy, patient forward, rhinitis, stanford medicine, stanford medicine x, stanford university, technology
As I’ve introduced before and teased in my last blog post, I’ve been attending an intensive 10-week program at Mary Free Bed Rehabiliation Hospital in Grand Rapids, MI. To learn more about the basics of the program, read here. The program incorporates nursing, medical,… Continue Reading “Fighting Through The Lesser Of Two Evils”
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Category: TreatmentsTags: ankylosing spondylitis, chronic disease, fibromyalgia, fusing, grand rapids, health, mary free bed, medical, medication, nursing, occupational therapy, pain, pain program, physical therapy, psychology, Spoonie, tattoo
