Tag: chronic fatigue syndrome
Posted on November 21, 2018
by Kristin M. Johnston
4 Comments
Good morning! I know, I haven’t written at all in so long, let alone given an update on my health and health management plan. My last update was about a year and a half ago, and I think I can say confidently that not… Continue Reading “The Longest Overdue Health Update: Fall/Winter 2018”
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Category: Autoimmune Arthritis, Chronic Illness, Fibromyalgia, Rheumatoid ArthritisTags: advice, blog, blogger, blogging, blogs, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, fibromyalgia, health, health update, healthcare, medical, research, rheumatoid arthritis, sleep
Posted on June 19, 2016
by Kristin M. Johnston
1 Comment
I have talked a lot about this in the past. When you have chronic illnesses, the difference between visible and invisible illnesses becomes a large part of your interactions with the world around you. It’s a conundrum because you want people to understand what you’re going through, yet you also don’t want it to be the first thing people notice about you.
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Category: Chronic IllnessTags: #selfcaremvmt, autoimmune disease, autoimmune diseases, chronic disease, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, Chronically Kristin, depression, education, fibromyalgia, health, healthcare, Invisible Illness, life, pain, patient advocacy, self care catalysts, self care movement, strength
Happy Wednesday, friends! It’s time for another guest blog! As I stated in the first guest blog, if you are interested in guest blogging on Chronically Kristin, please email me here: kristin.coppens@gmail.com.
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Category: Guest BlogsTags: autoimmunity, blog series, blogger, chronic bloggers network, chronic diseases, chronic fatigue syndrome, chronic illness, Chronically Kristin, guest blog, guest bloggers, health, Invisible Illness, life, living with ME, patient advocacy
Disclaimer: This is a sponsored post. However, all thoughts and opinions are my own. The healthcare system and industry in this country is a complicated being. We’re dealing with Pharma, Hospitals, Consumers, Doctors, other Healthcare Professionals, Insurance, Patients, Manufacturers, and more. Needless to say,… Continue Reading “MedNexus: You’re Not Just A Consumer”
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Category: Chronic Illness, Reviews/Sponsored PostsTags: ankylosing spondylitis, anxiety, chronic costochondritis, chronic fatigue syndrome, chronic illness, chronic pain, Chronically Kristin, depression, education, fibromyalgia, healthcare, MedNexus, patients, research, rhinitis, search engines
Posted on November 9, 2015
by Kristin M. Johnston
7 Comments
This post is a little overdue.. I think I might have been procrastinating it because there are many things to update with regards to my health. So I apologize that it’s a little lengthy. As per usual, it’s one step forward, three steps back,… Continue Reading ““You Don’t Have Cancer, But You Should Take Chemo””
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Category: TreatmentsTags: ankylosing spondylitis, arthritis, autoimmune, autoimmune disease, autoimmune diseases, autoimmunity, chemotherapy, chronic, chronic disease, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, disease, drugs, fibromyalgia, methotrexate
Posted on September 30, 2015
by Kristin M. Johnston
3 Comments
If I had to pick a constant in my life, something I hear and work towards continuously, and something that has been under the microscope for the past week and for the next three days, what would it be? That’s easy: patient first. Patients.… Continue Reading “Patients: If You’re Not First You’re Last”
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Category: Patient AdvocacyTags: ankylosing spondylitis, care, chronic disease, chronic fatigue syndrome, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, epatient, fibromyalgia, health, healthcare, mayo clinic, medicine x, medx, patient advocacy, patient care, patient engagement, rhinitis, stanford med x, transform, txfm
Posted on September 26, 2015
by Kristin M. Johnston
1 Comment
I’m currently out in Palo Alto, CA attending the Stanford Medicine X #MedX conference. A few hours into Day 2, and I know I need to get some thoughts down and try to dissemble the jumble of words floating around my head right now. Also,… Continue Reading “Home Is Wherever I’m With You”
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Category: Patient AdvocacyTags: ankylosing spondylitis, arthritis, autoimmune disease, autoimmunity, blogger, chronic disease, chronic fatigue syndrome, chronic illness, chronic pain, Chronically Kristin, conference, costochondritis, depression, disease, education, epatient, fibromyalgia, health, health system, healthcare, invisible illnesses, medx, palo alto, patient advocacy, patient forward, rhinitis, stanford medicine, stanford medicine x, stanford university, technology
Posted on September 13, 2015
by Kristin M. Johnston
1 Comment
Whoa! So sorry everyone. I have been seriously MIA lately. I can claim being busy, and tired, and stressed (all of which are pretty much always true), however I think I just fell out of a routine. I will try my best to get… Continue Reading “Decisions Right Now, Decisions For Life”
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Category: Chronic IllnessTags: ankylosing spondylitis, arthritis, autoimmune, autoimmune disease, autoimmunity, blogger, chats, chronic diseases, chronic fatigue syndrome, chronic illness, chronic pain, Chronically Kristin, costochondritis, depression, disease, drugs, fibromyalgia, mary free bed, mary free bed rehabilitation hospital, pacemaker, pain center, rhinitis, spinal cord stimulator, spine
Posted on August 10, 2015
by Kristin M. Johnston
9 Comments
Hi everyone! How are all of you doing? In a couple days I will have a comprehensive recap and update for everyone on my first few appointments with the Mary Free Bed Rehabiliation Hospital Pain Center Program. Before that, I wanted to give you… Continue Reading “A Health Update (August 2015)”
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Category: Chronic IllnessTags: ankylosing spondylitis, autoimmune disease, chronic diseases, chronic fatigue syndrome, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, fibromyalgia, health, health update, medical marijuana, methotrexate, pain, rhinitis, spine, symptoms, tremors