Tag: chronic illness

“You Don’t Have Cancer, But You Should Take Chemo”

This post is a little overdue.. I think I might have been procrastinating it because there are many things to update with regards to my health. So I apologize that it’s a little lengthy. As per usual, it’s one step forward, three steps back,…

My Tribe: How Sick Am I Really?

Everyone has put this so well: I’m with my tribe. I’m around everyone who gets me. Never have I felt this connected and synchronized in my entire life. These people at #MedX; these people are incredible. Their stories, their lives. So similar yet so…

Home Is Wherever I’m With You

I’m currently out in Palo Alto, CA attending the Stanford Medicine X #MedX conference. A few hours into Day 2, and I know I need to get some thoughts down and try to dissemble the jumble of words floating around my head right now. Also,…

Decisions Right Now, Decisions For Life

Whoa! So sorry everyone. I have been seriously MIA lately. I can claim being busy, and tired, and stressed (all of which are pretty much always true), however I think I just fell out of a routine. I will try my best to get…

Powering My Arthritis Power

I’m so excited to introduce this new blog series to everyone. I’ve been working closely with some organizations lately on how to become a better patient advocate. How can we be even more transparent so as to help other chronic illness fighters? I’m kicking…

I Patient, You Patient, ePatient. 

I was introduced to the term “ePatient” by Stanford School of Medicine’s MedX program. Among many other things, they hold a yearly conference in September that brings together physicians, scientists, researchers, students, patients, and more. The conference is a leading showcase of technology and…

Medical Records and Patient Empowerment

So as I was participating in the weekly #hcsm tweet chat tonight, there was a discussion around health records and data and who owns what. I’m not sure if I knew this previously or not, but come to find out: in the state of…

Naysayers and Misunderstandings

Yikes! I apologize for my big gap in posts here; I’ve been caught up in working a lot lately and my little blog has fallen by the wayside in the past month. I vow to be much better moving forward! Anyway! You can have…

When the Unexpected Lingers

Hello, hello! It’s been just a hot second, but I have been swamped with work and utterly exhausted any other moment. But here I am! Another reason I haven’t written a large amount lately is because I’ve been in pain. I’ve had about 8-10…

30 Things About My Invisible Illnesses You May Not Know

I found this blogger survey about invisible illnesses on But You Don’t Look Sick. I thought it would be a different way to share some truths about invisible illnesses and, hopefully, raise awareness for these chronic conditions that many of us suffer with, while…

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