A sort of love letter to pain — my gratitude to learning strength, grace, and humility.
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Category: Chronic Illness, Life AdviceTags: #chroniclife, advice, arthritis, autoimmune arthritis, autoimmune disease, autoimmune diseases, autoimmunity, chronic diseases, chronic illness, chronic illness bloggers, chronic life, chronic pain, Chronically Kristin, depression, health, Invisible Illness, life, mental state, pain, reality, strength, support, symptoms, truth
Getting real around here to talk about mental health and coronavirus anxiety.
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Category: Chronic Illness, Life AdviceTags: #chroniclife, advice, advocacy, anxiety, autoimmune disease, autoimmune diseases, chronic disease, chronic diseases, chronic illness, chronic life, Chronically Kristin, coronavirus, COVID19, depression, health, inspiration, invisibile illness, Invisible Illness, life, mental state, reality, strength, support, truth
Posted on June 19, 2016
by Kristin M. Johnston
1 Comment
I have talked a lot about this in the past. When you have chronic illnesses, the difference between visible and invisible illnesses becomes a large part of your interactions with the world around you. It’s a conundrum because you want people to understand what you’re going through, yet you also don’t want it to be the first thing people notice about you.
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Category: Chronic IllnessTags: #selfcaremvmt, autoimmune disease, autoimmune diseases, chronic disease, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, Chronically Kristin, depression, education, fibromyalgia, health, healthcare, Invisible Illness, life, pain, patient advocacy, self care catalysts, self care movement, strength
It’s been a long time since I’ve written a true health update here. However, while a great deal has happened, there are still no answers or conclusions to share with everyone. Maybe that’s why I’ve been avoiding writing about this–I still have so many unanswered questions. But for my own benefit of recording my health status accurately, and to catch us all up to at least where we stand today, it’s important that I share what I know thus far.
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Category: Chronic IllnessTags: ankylosing spondylitis, autoimmune disease, autoimmunity, chronic disease, chronic diseases, chronic illness, chronic life, chronic pain, Chronically Kristin, depression, fibromyalgia, health, healthcare, Invisible Illness, life, medications, second opinion, strength, UofM
Welcome to another week of the #SelfCareMvmt! This series on self-care is such an important one for chronic illness patients. It sounds counterproductive, but chronic illness patients tend to let self-care fall by the wayside, when we’re the ones who need it more than normal! I’m definitely guilty of this, so this week we’re talking about psychological and emotional self-care. If you’ve missed any of the previous posts, read week one, read week two, and read week three to get yourself caught up! Remember to follow the movement from Self Care Catalysts on social media with #SelfCareMvmt.
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Category: Life AdviceTags: #selfcaremvmt, anxiety, app, chronic diseases, chronic illness, chronic pain, Chronically Kristin, depression, disease management, emotional self-care, health storylines, mental health, psychological health, psychology, self care catalysts, self care movement
Disclaimer: This is a sponsored post. However, all thoughts and opinions are my own. The healthcare system and industry in this country is a complicated being. We’re dealing with Pharma, Hospitals, Consumers, Doctors, other Healthcare Professionals, Insurance, Patients, Manufacturers, and more. Needless to say,…
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Category: Chronic Illness, Reviews/Sponsored PostsTags: ankylosing spondylitis, anxiety, chronic costochondritis, chronic fatigue syndrome, chronic illness, chronic pain, Chronically Kristin, depression, education, fibromyalgia, healthcare, MedNexus, patients, research, rhinitis, search engines
Posted on February 1, 2016
by Kristin M. Johnston
10 Comments
I mentioned back in October, that I was in one of the worst flares I have ever had while I was doing all of that travel and conference experience (#MedX and #TXFM). The flare continued when I got home. And added lovely symptoms of fatigue,…
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Category: Chronic IllnessTags: ankylosing spondylitis, arthritis, autoimmune disease, autoimmune diseases, autoimmunity, chronic illness, chronic pain, Chronically Kristin, depression, fibromyalgia, health, health update, Invisible Illness, MRI, pain, second opinion, University of Michigan, UofM
Posted on December 16, 2015
by Kristin M. Johnston
4 Comments
I could say a lot of reasons why I haven’t blogged in weeks. But I won’t. It just hasn’t happened. I have a lot of posts in the queue, but not much action on them. Words are stuck. There’s a lot of things going…
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Category: Chronic IllnessTags: ankylosing spondylitis, costochondritis, depression, feelings, fibromyalgia, funk, FX, health update, honesty, life, rhinitis, you're the worst
Posted on November 9, 2015
by Kristin M. Johnston
7 Comments
This post is a little overdue.. I think I might have been procrastinating it because there are many things to update with regards to my health. So I apologize that it’s a little lengthy. As per usual, it’s one step forward, three steps back,…
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Category: TreatmentsTags: ankylosing spondylitis, arthritis, autoimmune, autoimmune disease, autoimmune diseases, autoimmunity, chemotherapy, chronic, chronic disease, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, disease, drugs, fibromyalgia, methotrexate
Posted on September 30, 2015
by Kristin M. Johnston
3 Comments
If I had to pick a constant in my life, something I hear and work towards continuously, and something that has been under the microscope for the past week and for the next three days, what would it be? That’s easy: patient first. Patients….
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Category: Patient AdvocacyTags: ankylosing spondylitis, care, chronic disease, chronic fatigue syndrome, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, epatient, fibromyalgia, health, healthcare, mayo clinic, medicine x, medx, patient advocacy, patient care, patient engagement, rhinitis, stanford med x, transform, txfm
