Good morning! I know, I haven’t written at all in so long, let alone given an update on my health and health management plan. My last update was about a year and a half ago, and I think I can say confidently that not… Continue Reading “The Longest Overdue Health Update: Fall/Winter 2018”
I have talked a lot about this in the past. When you have chronic illnesses, the difference between visible and invisible illnesses becomes a large part of your interactions with the world around you. It’s a conundrum because you want people to understand what you’re going through, yet you also don’t want it to be the first thing people notice about you.
It’s been a long time since I’ve written a true health update here. However, while a great deal has happened, there are still no answers or conclusions to share with everyone. Maybe that’s why I’ve been avoiding writing about this–I still have so many unanswered questions. But for my own benefit of recording my health status accurately, and to catch us all up to at least where we stand today, it’s important that I share what I know thus far.
Hello everyone! I have a special guest blog post this week from Dr. Elizabeth Kelly, and her blog: Having Community-based Conversations around Human Services through Listening, Engaging and Connecting (HCCHSLEC). I’m excited to share her point of view with you as she comes from a place of understanding chronic illness through being a mother and a community-based nurse. Be sure to follow her blog and follow more community-based conversations through her Twitter account.
If you haven’t checked out the #SELFCAREMVMT yet from Self Care Catalysts, I urge you to visit their website and read my first blog in the series from last week. Self-care is an integral part of the quality of life of a chronic illness patient. Patients are advocating for this movement, and now companies are too!
I am such a gadget nerd. When I was asked to review this product, I really didn’t know what to expect, but for some reason I envisioned a larger and more cumbersome tool. I was pleasantly surprised that not only was the tool small and portable, but it’s also rather cute!
This blog post is a tad overdue; to be honest, I think I have been apprehensive to talk about getting a second opinion, what that means, potential outcomes, and everything else that has been happening surrounding the appointment. It almost didn’t feel real that… Continue Reading “One Step Forward, Four Years Back”