As we wrapped up the last day of Mayo Clinic Center for Innovation Transform 2015 yesterday, so many thoughts are running through my brain. And said brain is mush, ya’ll. I’m traveled out. I’m conferenced out. I’m worked out. I need a vacation! But… Continue Reading “Patient, Person, Actor, Life.”
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Category: Patient AdvocacyTags: advocate, autoimmune disease, chronic life, Chronically Kristin, epatient, health, healthcare, healthcare system, innovation, Invisible Illness, labels, medx, patient advocacy, patients, presentation, stanford medicine x, transform, txfm, whole person
Posted on September 30, 2015
by Kristin M. Johnston
3 Comments
If I had to pick a constant in my life, something I hear and work towards continuously, and something that has been under the microscope for the past week and for the next three days, what would it be? That’s easy: patient first. Patients.… Continue Reading “Patients: If You’re Not First You’re Last”
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Category: Patient AdvocacyTags: ankylosing spondylitis, care, chronic disease, chronic fatigue syndrome, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, epatient, fibromyalgia, health, healthcare, mayo clinic, medicine x, medx, patient advocacy, patient care, patient engagement, rhinitis, stanford med x, transform, txfm
Everyone has put this so well: I’m with my tribe. I’m around everyone who gets me. Never have I felt this connected and synchronized in my entire life. These people at #MedX; these people are incredible. Their stories, their lives. So similar yet so… Continue Reading “My Tribe: How Sick Am I Really?”
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Category: Patient AdvocacyTags: advocacy, ankylosing spondylitis, autoimmune, chronic illness, chronic life, Chronically Kristin, conference, engagement, epatient, fibromyalgia, medicine x, medx, patient, sick, stanford
Posted on September 26, 2015
by Kristin M. Johnston
1 Comment
I’m currently out in Palo Alto, CA attending the Stanford Medicine X #MedX conference. A few hours into Day 2, and I know I need to get some thoughts down and try to dissemble the jumble of words floating around my head right now. Also,… Continue Reading “Home Is Wherever I’m With You”
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Category: Patient AdvocacyTags: ankylosing spondylitis, arthritis, autoimmune disease, autoimmunity, blogger, chronic disease, chronic fatigue syndrome, chronic illness, chronic pain, Chronically Kristin, conference, costochondritis, depression, disease, education, epatient, fibromyalgia, health, health system, healthcare, invisible illnesses, medx, palo alto, patient advocacy, patient forward, rhinitis, stanford medicine, stanford medicine x, stanford university, technology
I was introduced to the term “ePatient” by Stanford School of Medicine’s MedX program. Among many other things, they hold a yearly conference in September that brings together physicians, scientists, researchers, students, patients, and more. The conference is a leading showcase of technology and… Continue Reading “I Patient, You Patient, ePatient. “
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Category: Chronic IllnessTags: advocacy, autoimmune disease, awareness, blogger, chronic, chronic diseases, chronic illness, epatient, Facebook, fibromyalgia, grand rapids, life, mary free bed, medx, motivation, pain, pain program, patient, patient advocate, podcast, Q&A, questions, rheumatologist, sick, social media, Spoonie, spooniefamily, strength, The Spoon Theory, tweet chat