Tag: pain
A sort of love letter to pain — my gratitude to learning strength, grace, and humility.
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Category: Chronic Illness, Life AdviceTags: #chroniclife, advice, arthritis, autoimmune arthritis, autoimmune disease, autoimmune diseases, autoimmunity, chronic diseases, chronic illness, chronic illness bloggers, chronic life, chronic pain, Chronically Kristin, depression, health, Invisible Illness, life, mental state, pain, reality, strength, support, symptoms, truth
Throughout the years of being diagnosed with numerous autoimmune/chronic diseases, I’ve learned that it can be a complete mind-fuck. Sorry for the bluntness, but it’s really the only way to describe it. What you think is good news is bad news; what should be… Continue Reading “When Bad News Is Good News”
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Category: Chronic Illness, Rheumatoid Arthritis, TreatmentsTags: #chroniclife, autoimmune, autoimmune disease, autoimmune diseases, autoimmunity, chronic disease, chronic diseases, chronic illness, chronic life, chronic pain, Chronically Kristin, disease, health, health update, invisibile illness, medical, medications, pain, patient, patients, rheumatoid arthritis, symptoms
Posted on June 19, 2016
by Kristin M. Johnston
1 Comment
I have talked a lot about this in the past. When you have chronic illnesses, the difference between visible and invisible illnesses becomes a large part of your interactions with the world around you. It’s a conundrum because you want people to understand what you’re going through, yet you also don’t want it to be the first thing people notice about you.
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Category: Chronic IllnessTags: #selfcaremvmt, autoimmune disease, autoimmune diseases, chronic disease, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, Chronically Kristin, depression, education, fibromyalgia, health, healthcare, Invisible Illness, life, pain, patient advocacy, self care catalysts, self care movement, strength
If you’re like me, you know that medications are sometimes necessary but holistic methods are embraced when possible. Having multiple chronic diseases and suffering from severe chronic pain forces you to make medication decisions on a daily basis.
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Category: Reviews/Sponsored PostsTags: chronic bloggers, chronic bloggers network, chronic blogs, chronic diseases, chronic illness, chronic illness bloggers, chronic pain, Chronically Kristin, Invisible Illness, pain, quell, quell device, quell pain relief, review, sleep aids, sponsored post
Posted on February 1, 2016
by Kristin M. Johnston
10 Comments
I mentioned back in October, that I was in one of the worst flares I have ever had while I was doing all of that travel and conference experience (#MedX and #TXFM). The flare continued when I got home. And added lovely symptoms of fatigue,… Continue Reading “A Confused Health Update”
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Category: Chronic IllnessTags: ankylosing spondylitis, arthritis, autoimmune disease, autoimmune diseases, autoimmunity, chronic illness, chronic pain, Chronically Kristin, depression, fibromyalgia, health, health update, Invisible Illness, MRI, pain, second opinion, University of Michigan, UofM
As I’ve introduced before and teased in my last blog post, I’ve been attending an intensive 10-week program at Mary Free Bed Rehabiliation Hospital in Grand Rapids, MI. To learn more about the basics of the program, read here. The program incorporates nursing, medical,… Continue Reading “Fighting Through The Lesser Of Two Evils”
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Category: TreatmentsTags: ankylosing spondylitis, chronic disease, fibromyalgia, fusing, grand rapids, health, mary free bed, medical, medication, nursing, occupational therapy, pain, pain program, physical therapy, psychology, Spoonie, tattoo
Posted on August 10, 2015
by Kristin M. Johnston
9 Comments
Hi everyone! How are all of you doing? In a couple days I will have a comprehensive recap and update for everyone on my first few appointments with the Mary Free Bed Rehabiliation Hospital Pain Center Program. Before that, I wanted to give you… Continue Reading “A Health Update (August 2015)”
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Category: Chronic IllnessTags: ankylosing spondylitis, autoimmune disease, chronic diseases, chronic fatigue syndrome, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, fibromyalgia, health, health update, medical marijuana, methotrexate, pain, rhinitis, spine, symptoms, tremors
I was introduced to the term “ePatient” by Stanford School of Medicine’s MedX program. Among many other things, they hold a yearly conference in September that brings together physicians, scientists, researchers, students, patients, and more. The conference is a leading showcase of technology and… Continue Reading “I Patient, You Patient, ePatient. “
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Category: Chronic IllnessTags: advocacy, autoimmune disease, awareness, blogger, chronic, chronic diseases, chronic illness, epatient, Facebook, fibromyalgia, grand rapids, life, mary free bed, medx, motivation, pain, pain program, patient, patient advocate, podcast, Q&A, questions, rheumatologist, sick, social media, Spoonie, spooniefamily, strength, The Spoon Theory, tweet chat
Yikes! I apologize for my big gap in posts here; I’ve been caught up in working a lot lately and my little blog has fallen by the wayside in the past month. I vow to be much better moving forward! Anyway! You can have… Continue Reading “Naysayers and Misunderstandings”
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Category: Chronic IllnessTags: arthritis, autoimmune, autoimmune disease, chats, chronic, chronic illness, disease, fibromyalgia, life, livestreaming, meerkat, my invisible life, naysayers, pain, patients, Q&A, sick, Spoonie, strength, The Spoon Theory, tweet chat
Hello, hello! It’s been just a hot second, but I have been swamped with work and utterly exhausted any other moment. But here I am! Another reason I haven’t written a large amount lately is because I’ve been in pain. I’ve had about 8-10… Continue Reading “When the Unexpected Lingers”
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Category: Chronic IllnessTags: ankylosing spondylitis, arthritis, autoimmune disease, autoimmune diseases, autoimmunity, chronic illness, chronic pain, flare up, pain, sleep, strength, symptoms
