Tag: patient advocacy
Let’s throw it back to the early days of blogging with a fun Q&A blog survey to get to know me.
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Category: Chronic IllnessTags: #chroniclife, about me, blog, blogger, blogging, chronic bloggers, chronic bloggers network, chronic illness, chronic illness bloggers, chronic life, Chronically Kristin, education, inspiration, life, patient advocacy, patients, Q&A, reality, self-care, survey, truth
Posted on June 19, 2016
by Kristin M. Johnston
1 Comment
I have talked a lot about this in the past. When you have chronic illnesses, the difference between visible and invisible illnesses becomes a large part of your interactions with the world around you. It’s a conundrum because you want people to understand what you’re going through, yet you also don’t want it to be the first thing people notice about you.
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Category: Chronic IllnessTags: #selfcaremvmt, autoimmune disease, autoimmune diseases, chronic disease, chronic diseases, chronic fatigue syndrome, chronic illness, chronic life, chronic pain, Chronically Kristin, depression, education, fibromyalgia, health, healthcare, Invisible Illness, life, pain, patient advocacy, self care catalysts, self care movement, strength
Hello everyone! I have a special guest blog post this week from Dr. Elizabeth Kelly, and her blog: Having Community-based Conversations around Human Services through Listening, Engaging and Connecting (HCCHSLEC). I’m excited to share her point of view with you as she comes from a place of understanding chronic illness through being a mother and a community-based nurse. Be sure to follow her blog and follow more community-based conversations through her Twitter account.
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Category: Guest BlogsTags: advocacy, asthma, caregiver, chronic illness, Chronically Kristin, communications, community, guest blog, guest bloggers, healthcare, healthcare system, nurse, patient advocacy
Happy Wednesday, friends! It’s time for another guest blog! As I stated in the first guest blog, if you are interested in guest blogging on Chronically Kristin, please email me here: kristin.coppens@gmail.com.
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Category: Guest BlogsTags: autoimmunity, blog series, blogger, chronic bloggers network, chronic diseases, chronic fatigue syndrome, chronic illness, Chronically Kristin, guest blog, guest bloggers, health, Invisible Illness, life, living with ME, patient advocacy
If you haven’t checked out the #SELFCAREMVMT yet from Self Care Catalysts, I urge you to visit their website and read my first blog in the series from last week. Self-care is an integral part of the quality of life of a chronic illness patient. Patients are advocating for this movement, and now companies are too!
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Category: Chronic Illness, Life AdviceTags: #selfcaremvmt, ankylosing spondylitis, app, blogger, chronic illness, chronic pain, Chronically Kristin, disease management, education, exercise, fibromyalgia, health storylines, healthcare, patient advocacy, physical self-care, self care catalysts, self care movement, support
Posted on April 15, 2016
by Kristin M. Johnston
1 Comment
Happy Friday, everyone! I can’t help but be happy and smiley today; the weather is so beautiful in Chicago today. Wait, why am I in Chicago? This weekend is the HealtheVoices conference, which is put on by Janssen, is a place for… Continue Reading “#HealtheVoices16 Conference”
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Category: Chronic Illness, Patient AdvocacyTags: #healthevoices16, chicago, chronic illness, Chronically Kristin, conference, epatient, healthcare, healthevoices, janssen, online advocates, patient advocacy, social media
Hi everyone! So as most of you know, I’ve spent the past few weeks blogging for ePharma. The conference was last week and I really enjoyed live-coverage and blogging for the sessions. I have a full recap coming soon, sometime this week. However, here’s… Continue Reading “ePharma Recap Coming: Sorry for the Interruption”
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Posted on January 17, 2016
by Kristin M. Johnston
1 Comment
Sometimes the timing on things in life blows my mind. I have recently been feeling pretty down about not having more opportunities or time to do my ePatient advocacy and chronic disease awareness work, especially when it comes to blogging and social media about… Continue Reading “ePharma Summit”
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Category: Patient AdvocacyTags: autoimmune disease, blogging, chronic illness, Chronically Kristin, digital strategy, epharma, epharma summit, epharma16, health, healthcare, innovation, patient advocacy
As we wrapped up the last day of Mayo Clinic Center for Innovation Transform 2015 yesterday, so many thoughts are running through my brain. And said brain is mush, ya’ll. I’m traveled out. I’m conferenced out. I’m worked out. I need a vacation! But… Continue Reading “Patient, Person, Actor, Life.”
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Category: Patient AdvocacyTags: advocate, autoimmune disease, chronic life, Chronically Kristin, epatient, health, healthcare, healthcare system, innovation, Invisible Illness, labels, medx, patient advocacy, patients, presentation, stanford medicine x, transform, txfm, whole person
Posted on September 30, 2015
by Kristin M. Johnston
3 Comments
If I had to pick a constant in my life, something I hear and work towards continuously, and something that has been under the microscope for the past week and for the next three days, what would it be? That’s easy: patient first. Patients.… Continue Reading “Patients: If You’re Not First You’re Last”
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Category: Patient AdvocacyTags: ankylosing spondylitis, care, chronic disease, chronic fatigue syndrome, chronic life, chronic pain, Chronically Kristin, costochondritis, depression, epatient, fibromyalgia, health, healthcare, mayo clinic, medicine x, medx, patient advocacy, patient care, patient engagement, rhinitis, stanford med x, transform, txfm