Tag: patient advocacy

A Throwback Get To Know Me

Let’s throw it back to the early days of blogging with a fun Q&A blog survey to get to know me.

An Open Letter To: ____ (The World Around Me)

I have talked a lot about this in the past. When you have chronic illnesses, the difference between visible and invisible illnesses becomes a large part of your interactions with the world around you. It’s a conundrum because you want people to understand what you’re going through, yet you also don’t want it to be the first thing people notice about you.

Guest Post: “Addressing Chronic Illness Through Advocacy Activities and Skills”

Hello everyone! I have a special guest blog post this week from Dr. Elizabeth Kelly, and her blog: Having Community-based Conversations around Human Services through Listening, Engaging and Connecting (HCCHSLEC). I’m excited to share her point of view with you as she comes from a place of understanding chronic illness through being a mother and a community-based nurse. Be sure to follow her blog and follow more community-based conversations through her Twitter account.

Guest Blogger: Amy Saunders of “Living with ME”

Happy Wednesday, friends! It’s time for another guest blog! As I stated in the first guest blog, if you are interested in guest blogging on Chronically Kristin, please email me here: kristin.coppens@gmail.com.

#SelfCareMvmt 2: Physical Self-Care

If you haven’t checked out the #SELFCAREMVMT yet from Self Care Catalysts, I urge you to visit their website and read my first blog in the series from last week. Self-care is an integral part of the quality of life of a chronic illness patient. Patients are advocating for this movement, and now companies are too!

#HealtheVoices16 Conference

Happy Friday, everyone!   I can’t help but be happy and smiley today; the weather is so beautiful in Chicago today. Wait, why am I in Chicago?   This weekend is the HealtheVoices conference, which is put on by Janssen, is a place for… Continue Reading “#HealtheVoices16 Conference”

ePharma Recap Coming: Sorry for the Interruption

Hi everyone! So as most of you know, I’ve spent the past few weeks blogging for ePharma. The conference was last week and I really enjoyed live-coverage and blogging for the sessions. I have a full recap coming soon, sometime this week. However, here’s… Continue Reading “ePharma Recap Coming: Sorry for the Interruption”

ePharma Summit

Sometimes the timing on things in life blows my mind. I have recently been feeling pretty down about not having more opportunities or time to do my ePatient advocacy and chronic disease awareness work, especially when it comes to blogging and social media about… Continue Reading “ePharma Summit”

Patient, Person, Actor, Life.

As we wrapped up the last day of Mayo Clinic Center for Innovation Transform 2015 yesterday, so many thoughts are running through my brain. And said brain is mush, ya’ll. I’m traveled out. I’m conferenced out. I’m worked out. I need a vacation! But… Continue Reading “Patient, Person, Actor, Life.”

Patients: If You’re Not First You’re Last

If I had to pick a constant in my life, something I hear and work towards continuously, and something that has been under the microscope for the past week and for the next three days, what would it be? That’s easy: patient first. Patients.… Continue Reading “Patients: If You’re Not First You’re Last”

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